The average human body contains 5 litres of blood. At HealthMatch, we’re after your blood – in a good way. Find a blood disorder clinical trial for you.
Blood is a precious resource – but thousands of Australian’s are living with a condition that affects their blood. Over 2,800 people have haemophilia; 2,100 are diagnosed with von Willebrand Disease; HIV sees more than 25,000 people affected, and more than 182,000 are living with Hepatitis C.
Haemophilia and von Willebrand disease (VWD), are inherited conditions without a cure. Hepatitis C has a 95% cure rate. There is no cure for an HIV-positive diagnosis. Each blood disorder has its own unique treatment.
Looking for how to help someone with a blood disorder? At HealthMatch, we’re bringing forward tomorrow’s treatments. We have more than 10 trials available for blood disorders, including ones aimed at gene therapy, replacement therapy, antiviral medications and biologic therapy.
"Living with haemophilia is difficult, especially as I balance it with other conditions. I’ve had to become a lot more cautious and aware... it's exhausting and confusing." Nate*, 62
men have Haemophilia A ¹
of newly reported Hepatits C cases each year are Aboriginal and Torres Strait Islanders ²
of Australians living with HIV had an undetectable viral load in 2017 ³
Haemophilia Foundation Australia (HFA) represents people affected by haemophilia, von Willebrand disease and other bleeding disorders since 1986. They aim to inspire excellence in treatment, care and support through representation, education and the promotion of research.
They work with foundations across the country to ensure everyone affected by bleeding disorders has access to the best practice treatment and care possible.
Haemophilia Foundation Australia Support Services
HFA has multiple services and resources in place to best support people with bleeding disorders. This includes a variety of educational publications and posters; conferences; a hub for older people; youth leadership and mentoring programs; kids colouring pages and more.
The online toolkit allows people at risk of HIV to keep on top of their testing regime. It includes information on, and the ability to book a test; a risk calculator; where to find free condoms in NSW, and a messenger support service.
1800 HEP ABC (1800 437 222) directs people to community-based hepatitis organisations in their state or territory. Friendly and confidential help is offered. The Infoline is available Monday to Friday, 9am to 5pm.
Haemophilia is a genetic disorder in which the blood doesn’t clot properly. This is due to it not having enough clotting factor – a protein in the blood that controls bleeding.
With von Willebrand Disease, people have a problem with a protein in their blood that helps control bleeding – the von Willebrand factor. The protein doesn’t work the way it should, or people do not have enough of it. The result? Blood takes longer to clot, and bleeding takes longer to stop.
Hepatitis C is a liver infection caused by the hepatitis C virus. It’s transmitted through blood-to-blood contact and can cause long-term health problems if left untreated.
HIV (human immunodeficiency virus) is where a virus attacks cells that help the body fight off infection. This makes those with HIV more vulnerable to other infections and diseases. Untreated HIV can lead to AIDS (acquired immunodeficiency syndromes).
Symptoms for bleeding disorders vary depending on the condition.
Haemophilia symptoms include unexplained and excessive bleeding from cuts, injuries, or surgeries; numerous large or deep bruises; unusual bleeding after needles; painful, tight joints; blood in urine or stool; random nosebleeds and more.
Von Willebrand Disease shares some symptoms with haemophilia, including large and frequent bruises; heavy or long-lasting bleeding from cuts, injuries or surgeries.
People with VWD also may have bleeding gums; women may have heavy periods or experience heavy bleeding in labour; long-lasting nosebleeds; and some people may bleed into joints, muscles, and into the gut.
Symptoms of Hepatitis C include bleeding and bruising easily; fatigue; poor appetite; jaundiced skin; itchy skin; fluid buildup in the abdomen; swelling in the legs; slurred speech and more.
Two-thirds of people who get infected with HIV will experience a flu-like illness two to four weeks afterwards. Symptoms can include fever; chills; rash; night sweats; mouth ulcers; fatigue and more.
Specialised treatment is required for haemophilia, to help the blood clot normally. It is often infused or injected into a vein.
Treatment for von Willebrand Disease depends on the type the person has, and how severe it is. It may include doses of the synthetic hormone, desmopressin; injections of clotting factors; oral medications; fibrin glue and more.
95% of Hepatitis C cases are curable, thanks to new breakthrough hep C treatments (most often oral medications).
People with a positive HIV diagnosis can take antiretrovirals as treatment. PrEP, pre-exposure prophylaxis, protects HIV negative people and prevents HIV infection. Treating HIV earlier is key.
Haemophilia and von Willebrand Disease do not currently have a cure.
95% of Hep C cases are curable.
HIV is currently not curable but is well manageable.
A clinical trial is a scientific study involving patient or non-patient (healthy) human volunteers. They help determine whether medicines are safe and effective to introduce as new treatments for a particular disease or condition.
HealthMatch matches you to clinical trials, in an easy-to-understand process.
After completing a medical questionnaire, our platform searches for and filters eligible trials for you. You’re able to view matches and apply for trials, on your trial dashboard.
We’ll put you in direct contact with the trial group once you’ve been accepted. We won’t stop searching until we’ve found you the right match.