We only use your sensitive health information (with your authorisation) to find and match you with potential treatments and clinical trials.
We will use aggregated and de-identified information for clinical trial research and development. We may share this aggregated and de-identified information with our carefully selected third party partners for the same purpose. This will, for example, help guide research efforts and drug development, progressing life-saving cures onto the market faster.
We will never sell your sensitive health information to target ads or marketing to you and we will not use your sensitive health information for these purposes without your consent.
Effective: April 13, 2021
Personal information includes information or an opinion about an individual that is reasonably identifiable. For example, this may include your name, age, gender, postcode and contact details. It may also include sensitive information, such as health information and genetic information, that you provide to us.
We are a for-profit social enterprise that matches you with clinical trials based on certain attributes that are derived from information which you provide to us through the HealthMatch Platform. We provide de-identified attributes (i.e. information about your medical conditions) to clinical trial providers to determine your suitability for participation in clinical trials. With your permission, we may also provide your personal information to clinical trial providers (including clinical trial sites). We receive a fee from clinical trial providers each time we refer a potential trial participant, but we do not screen or prioritise certain trials based on fee arrangements with clinical trial providers.
By using the HealthMatch Platform, you will be able to control and manage the personal data you input into the Platform in various ways. For example, you will be able to:
Where you use the Platform on behalf of someone else (i.e. a patient), you must ensure you have that person's consent to provide us with their personal information.
In order to match you with clinical trials, we provide information about your attributes to clinical trial providers such as pharmaceutical companies, clinical trial centres connected to hospitals or other health service providers, and contract research organisations. Where we provide such information, it is in a de-identified format. Clinical trial providers use this information to confirm your suitability to participate in clinical trials, and may also use this information on an aggregated basis for research and development purposes.
We may provide aggregate de-identified information derived from personal and sensitive information to carefully selected non-profit disease-specific advocacy groups for research purposes and to assist in promoting awareness of clinical trials and medical developments.
We may also undertake data analytics on de-identified data related to your use of our Platform, in order to improve the functionality of the Platform.
We do not seek to collect information relating to your results as part of a clinical trial that you are matched with through use of our Platform.
We may collect the following types of personal information and sensitive information:
We may collect these types of personal information either directly from you, or from third parties. We may collect this information when you:
In addition, when you apply for a job or position with us we may collect certain information from you (including your name, contact details, working history and relevant records checks), from any recruitment consultant, your previous employers and others who may be able to provide information to us to assist in our decision on whether or not to make you an offer of employment or engage you under a contract. The Privacy Act contains certain exemptions regarding certain acts undertaken in relation to employee records. Where appropriate, we make use of relevant exemptions under the Privacy Act.
We may collect, hold, use and disclose your personal information for the following purposes:
When you use our Platform, we may:
We engage third party service providers to assist us with delivering direct marketing via various channels, including through social media and other digital platforms. We take all reasonable steps to ensure that your personal information is protected when disclosing information to such third parties.
You can always opt-out of receiving direct marketing communications by contacting us using the details set out below, by using an unsubscribe link or by telling us through your profile settings via our Platform.
If you are not yet a registered user of our Platform, then we may market our services to you generally – including via social media, advertising through our website or through third party websites and other digital or non-digital platforms. We will always do this in accordance with our legal requirements and if we use a third party to do so, we will only do so with our trusted partners.
We may disclose your personal information outside of Australia to our third party service providers located in the United States and Japan. We will take reasonable steps to ensure that any overseas recipient will deal with such personal information in a way that is consistent with the Australian Privacy Principles.
We may disclose de-identified information outside of Australia to clinical trial providers located in the United States, China, Singapore, New Zealand and Europe (including the European Union), for the purposes of matching you with clinical trials. We will always seek your consent before providing your name and contact details to any such clinical trial provider so that you can participate in a trial.
We may collect personal information about you when you use and access our website or Platform.
While we do not use browsing information to identify you personally, we may record certain information about your use of our website and Platform, such as which pages you visit, the time and date of your visit and the internet protocol address assigned to your computer.
We may also use ‘cookies’ or other similar tracking technologies on our website and Platform that help us track your website or Platform usage and remember your preferences. Cookies are small files that store information on your computer, TV, mobile phone or other device. They enable the entity that put the cookie on your device to recognise you across different websites, services, devices and/or browsing sessions. You can disable cookies through your internet browser but our websites may not work as intended for you if you do so.
We may hold your personal information in either electronic or hard copy form. We take reasonable steps to protect your personal information from misuse, interference and loss, as well as unauthorised access, modification or disclosure and we use a number of physical, administrative, personnel and technical measures to protect your personal information. For example, we:
We also restrict access to personal information within our organisation to those personnel who need it to operate our service.
However, we cannot guarantee the security of your personal information.
You can access and update the personal information we hold about you by logging into your profile on our Platform.
Where we hold other personal information about you, you can contact us using the information below or the contact us function on our website to access or correct this information.
Sometimes, we may not be able to provide you with access to all of your personal information and, where this is the case, we will tell you why. We may also need to verify your identity when you request your personal information. If you contact us about inaccurate information, we will take reasonable steps to ensure that it is corrected.
If you think we have breached the Privacy Act, or you wish to make a complaint about the way we have handled your personal information, you can contact us using the details set out below or the contact us function on our website. Please include your name, email address and/or telephone number and clearly describe your complaint. We will acknowledge your complaint and respond to you regarding your complaint within a reasonable period of time. If you think that we have failed to resolve the complaint satisfactorily, we will provide you with information about the further steps you can take.